Browsing Brage NIH by Author "Berg, Ellen"
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Parental intervention program for preschool children with rare diseases: A mixed methods evaluation of parents’ experiences and utility
Velvin, Gry; Johnsen, Vigdis; Lidal, Ingeborg Beate; Berg, Ellen (Peer reviewed; Journal article, 2023)Background: The purpose of this study was twofold: (i) To assess the parents’ experiences and perception of participating in a “Parental Intervention Program for Preschool children with Rare Diseases” (PIPP-RDs). (ii) To ...