Blar i Brage NIH på tidsskrift "Orphanet Journal of Rare Diseases"
Viser treff 1-1 av 1
-
Parental intervention program for preschool children with rare diseases: A mixed methods evaluation of parents’ experiences and utility
(Peer reviewed; Journal article, 2023)Background: The purpose of this study was twofold: (i) To assess the parents’ experiences and perception of participating in a “Parental Intervention Program for Preschool children with Rare Diseases” (PIPP-RDs). (ii) To ...